Decision making after prenatal diagnosis ...
Type de document :
Article dans une revue scientifique
PMID :
URL permanente :
Titre :
Decision making after prenatal diagnosis of a syndrome predisposing to intellectual disability: What prospective parents need to know and the importance of non-medical information
Auteur(s) :
Titre de la revue :
Journal of Intellectual and Developmental Disability
Numéro :
37
Pagination :
315-323
Éditeur :
Taylor & Francis
Date de publication :
2012
ISSN :
1366-8250
Mot(s)-clé(s) :
Fragile X syndrome
Down syndrome
Decision making
Information
Prenatal diagnosis
Prenatal testing
Information needs
Down syndrome
Decision making
Information
Prenatal diagnosis
Prenatal testing
Information needs
Discipline(s) HAL :
Sciences du Vivant [q-bio]/Ethique
Résumé en anglais : [en]
Background Recently researchers have suggested that non-medical information may impact the decision to continue or terminate a pregnancy after a prenatal diagnosis. This study is an investigation of what type of information ...
Lire la suite >Background Recently researchers have suggested that non-medical information may impact the decision to continue or terminate a pregnancy after a prenatal diagnosis. This study is an investigation of what type of information prospective parents need for this decision making in the case of a condition predisposing to intellectual disability. Method Semistructured interviews were conducted in France, Belgium, and Germany with 33 parents whose children have a syndrome that predisposes to intellectual disability. Results The essential information related to three dimensions: (1) the foetus as a future child and an individual person; (2) the couple as future parents; and (3) the social environment of the future child and her parents, and especially the ability of the social environment to provide support. Conclusions The findings introduce a new perspective on these prospective parents’ essential needs, highlighting that these needs are not limited to medical information but encompass non-medical information and institutional patterns.Lire moins >
Lire la suite >Background Recently researchers have suggested that non-medical information may impact the decision to continue or terminate a pregnancy after a prenatal diagnosis. This study is an investigation of what type of information prospective parents need for this decision making in the case of a condition predisposing to intellectual disability. Method Semistructured interviews were conducted in France, Belgium, and Germany with 33 parents whose children have a syndrome that predisposes to intellectual disability. Results The essential information related to three dimensions: (1) the foetus as a future child and an individual person; (2) the couple as future parents; and (3) the social environment of the future child and her parents, and especially the ability of the social environment to provide support. Conclusions The findings introduce a new perspective on these prospective parents’ essential needs, highlighting that these needs are not limited to medical information but encompass non-medical information and institutional patterns.Lire moins >
Langue :
Anglais
Audience :
Internationale
Vulgarisation :
Non
Établissement(s) :
CNRS
Université de Lille
Université de Lille
Collections :
Date de dépôt :
2019-10-29T11:37:21Z