Title :

Do spouse caregivers of young and older persons with dementia have different needs? a comparative study

Author(s) :

Wawrziczny, Emilie [Auteur]
Sciences Cognitives et Sciences Affectives (SCALab) - UMR 9193
Laboratoire Sciences Cognitives et Sciences Affectives - UMR 9193 [SCALab]
Pasquier, Florence [Auteur]
Troubles cognitifs dégénératifs et vasculaires - U1171
Troubles cognitifs dégénératifs et vasculaires - U 1171 [TCDV]
Troubles cognitifs dégénératifs et vasculaires - U 1171 [TCDV]
Ducharme, Francine [Auteur]
Kergoat, Marie-Jeanne [Auteur]
Antoine, Pascal [Auteur]
Sciences Cognitives et Sciences Affectives (SCALab) - UMR 9193
Laboratoire Sciences Cognitives et Sciences Affectives - UMR 9193 [SCALab]

Journal title :

Psychogeriatrics . the official journal of the Japanese Psychogeriatric Society

Abbreviated title :

Psychogeriatrics

Volume number :

17

Pages :

282-291

Publication date :

2017-09-01

ISSN :

1346-3500

English keyword(s) :

comparison
spouse caregivers
needs
late-onset dementia
early-onset dementia
Mesh:Aged
Mesh:Dementia/psychology
Mesh:Adaptation
Mesh:Psychological
Mesh:Age of Onset
Mesh:Dementia/nursing*
Mesh:Female
Mesh:Health Services Needs and Demand*
Mesh:Humans
Mesh:Male
Mesh:Needs Assessment
Mesh:Social Support*
Mesh:Spouses/psychology*
Mesh:Surveys and Questionnaires
Mesh:Young Adult
Mesh:Caregivers/psychology*
Mesh:Cost of Illness*

HAL domain(s) :

Sciences du Vivant [q-bio]
Sciences cognitives

English abstract : [en]

OBJECTIVE: The aim of this study was to explore the needs of spouse caregivers of persons with dementia (PWD) and then to compare them based on the PWD's age at disease onset. This data could be used to adapt support ...
Show more >OBJECTIVE: The aim of this study was to explore the needs of spouse caregivers of persons with dementia (PWD) and then to compare them based on the PWD's age at disease onset. This data could be used to adapt support programmes to address differences between the two groups. METHODS: Thirty-eight spouse caregivers of persons with late-onset dementia and 40 spouse caregivers of persons with early-onset dementia (PEOD) agreed to participate in the study. The mean ± SD age of the PEOD was 57.6 ± 4.0 years, whereas it was 80.9 ± 5.3 years for the persons with late-onset dementia. Interviews were conducted in the spouse caregivers' homes with only the spouse caregiver. The semi-structured interviews were based on the French version of the Carers Outcome Agreement Tool. The interviews were analyzed in two steps. The first step was qualitative to identify needs. The data were thematically analyzed using QSR NVivo 10. The second step was quantitative to compare the needs depending on the PWD's age at onset. The comparison between the two groups was performed using the χ2 RESULTS: The results demonstrated that the majority of needs are the same for the two groups of spouse caregivers. All caregivers need to unwind, to stimulate and pay attention to the PWD, to break the isolation, and to be more prepared and confident. However, some differences emerge, with the spouse caregivers of PEOD expressing a greater number of needs. The caregivers of PEOD seem to have a greater need to interact and maintain contacts with other people (P = 0.001), have more general care-related needs (P = 0.005), require more appropriate care structures (P = 0.037), and need greater assistance with administrative procedures (P = 0.004). CONCLUSIONS: To improve spouse caregivers' well-being and sense of efficiency, it would be interesting to develop a support programme with a common framework and specific modules depending on the PWD's age at disease onset.Show less >

Language :

Anglais

Audience :

Internationale

Popular science :

Non

Administrative institution(s) :

CHU Lille
CNRS
Inserm
Université de Lille

Collections :

• Lille Neurosciences & Cognition (LilNCog) - U 1172

Research team(s) :

Troubles cognitifs dégénératifs et vasculaires

Submission date :

2019-11-27T13:03:05Z
2020-01-21T11:56:35Z