Title :

Characteristics of the spouse caregiving experience: comparison between early- and late-onset dementia

Author(s) :

Wawrziczny, Emilie [Auteur]
415060|||Laboratoire Sciences Cognitives et Sciences Affectives - UMR 9193 [SCALab]
Berna, Guillaume [Auteur]
Laboratoire Sciences Cognitives et Sciences Affectives - UMR 9193 [SCALab]
Ducharme, Francine [Auteur]
Centre de recherche de l'Institut universitaire de gériatrie de Montreal [CRIUGM]
Kergoat, Marie-Jeanne [Auteur]
Centre de recherche de l'Institut universitaire de gériatrie de Montreal [CRIUGM]
Pasquier, Florence [Auteur]
451074|||Troubles cognitifs dégénératifs et vasculaires - U 1171 - EA 1046 [TCDV]
Antoine, Pascal [Auteur]
415060|||Laboratoire Sciences Cognitives et Sciences Affectives - UMR 9193 [SCALab]

Journal title :

Aging and Mental Health

Abbreviated title :

Aging Ment Health

Volume number :

22

Pages :

p.1213-1221

Publisher :

Taylor & Francis (Routledge)

Publication date :

2017-06-20

ISSN :

1364-6915

English keyword(s) :

Caregiving
other dementias
Alzheimer''s disease
quantitative methods and statistics

HAL domain(s) :

Sciences du Vivant [q-bio]

English abstract : [en]

To investigate the characteristics of the caregiving experience according to age at onset of dementia to adapt support programs. Fifty-seven spouse caregivers of persons with early-onset dementia (PEOD) and 93 spouse ...
Show more >To investigate the characteristics of the caregiving experience according to age at onset of dementia to adapt support programs. Fifty-seven spouse caregivers of persons with early-onset dementia (PEOD) and 93 spouse caregivers of persons with late-onset dementia (PLOD) participated. The characteristics of the caregiving experience were assessed using questionnaires. We compared the two groups according to age at onset of the disease using a multivariate test, Pillai's Trace test. The analysis showed that there were similarities and differences between the two groups of spouse caregivers. All spouse caregivers were confident in their caregiving role and fairly well prepared for future needs and reported mild depressive and anxious symptoms. However, they lacked informal support, had low confidence in requesting respite care and reported effects on their health. Compared to spouse caregivers of PLOD, spouse caregivers of PEOD had more severe perceptions of the cognitive disorders of persons with dementia (PWD) and had a better sense of preparedness and knowledge of services. Spouse caregivers of PLOD were more confident in their ability to control disturbing thoughts. The results suggest that programs should provide information on support networks to improve preparedness for spouse caregivers of PLOD as well as emphasizing positive coping strategies for caregivers of PEOD to maintain good-quality relationships with PWD, which influences the perception of the symptoms. For both groups, family relationships should be considered.Show less >

Language :

Anglais

Audience :

Internationale

Popular science :

Non

ANR Project :

/

Other project(s) or funding source(s) :

Fond de Recherche du Québec-Santé (Québec)
the Canadian Institutes of Health Research (Canada)
the LabEx (laboratory of excellence)
DISTALZ (Development of Innovative Strategies for a Transdisciplinary approach to Alzheimer disease)
MESHS (Maison Européenne des Sciences de l’Homme et de la Société, Lille, France

Administrative institution(s) :

CHU Lille
CNRS
Inserm
Université de Lille

Collections :

• Lille Neurosciences & Cognition (LilNCog) - U 1172
• Sciences Cognitives et Sciences Affectives (SCALab) - UMR 9193

Research team(s) :

Troubles cognitifs dégénératifs et vasculaires
Équipe Dynamique Émotionnelle et Pathologies (DEEP)

Submission date :

2019-11-27T13:04:14Z
2019-11-28T08:09:19Z
2023-08-22T08:30:26Z
2023-08-22T09:45:02Z
2024-01-16T12:34:57Z
2024-03-06T09:17:50Z
2024-03-10T16:40:36Z
2024-03-20T07:20:14Z