Crossed views of burden and emotional ...
Type de document :
Article dans une revue scientifique: Article original
DOI :
PMID :
URL permanente :
Titre :
Crossed views of burden and emotional distress of cancer patients and family caregivers during palliative care
Auteur(s) :
Leroy, Tanguy [Auteur]
Laboratoire Sciences Cognitives et Sciences Affectives - UMR 9193 [SCALab]
Fournier, Emmanuelle [Auteur]
Laboratoire Sciences Cognitives et Sciences Affectives - UMR 9193 [SCALab]
Penel, Nicolas [Auteur]
Evaluation des technologies de santé et des pratiques médicales - ULR 2694 [METRICS]
Christophe, Veronique [Auteur]
Laboratoire Sciences Cognitives et Sciences Affectives - UMR 9193 [SCALab]
Laboratoire Sciences Cognitives et Sciences Affectives - UMR 9193 [SCALab]
Fournier, Emmanuelle [Auteur]
Laboratoire Sciences Cognitives et Sciences Affectives - UMR 9193 [SCALab]
Penel, Nicolas [Auteur]
Evaluation des technologies de santé et des pratiques médicales - ULR 2694 [METRICS]
Christophe, Veronique [Auteur]
Laboratoire Sciences Cognitives et Sciences Affectives - UMR 9193 [SCALab]
Titre de la revue :
Psycho-oncology
Nom court de la revue :
Psycho-Oncol.
Numéro :
25
Pagination :
1278-1285
Date de publication :
2016-11-01
ISSN :
1057-9249
Mot(s)-clé(s) en anglais :
Mesh:Neoplasms/psychology*
Mesh:Neoplasms/nursing
Mesh:Middle Aged
Mesh:Male
Mesh:Humans
Mesh:Female
Mesh:Caregivers/psychology*
Mesh:Aged
Mesh:Adult
Mesh:Adaptation
Mesh:Psychological
Mesh:Surveys and Questionnaires
Mesh:Stress
Mesh:Psychological/psychology*
Mesh:Self Concept
Mesh:Quality of Life*
Mesh:Palliative Care/psychology*
Mesh:Palliative Care/methods
Mesh:Neoplasms/nursing
Mesh:Middle Aged
Mesh:Male
Mesh:Humans
Mesh:Female
Mesh:Caregivers/psychology*
Mesh:Aged
Mesh:Adult
Mesh:Adaptation
Mesh:Psychological
Mesh:Surveys and Questionnaires
Mesh:Stress
Mesh:Psychological/psychology*
Mesh:Self Concept
Mesh:Quality of Life*
Mesh:Palliative Care/psychology*
Mesh:Palliative Care/methods
Discipline(s) HAL :
Sciences du Vivant [q-bio]
Sciences cognitives
Sciences cognitives
Résumé en anglais : [en]
Studies regarding natural caregivers' burden (CB) in palliative situations, as well as its determinants and consequences, have been numerous during the last 20 years. Yet, studies regarding how terminally ill cancer patients ...
Lire la suite >Studies regarding natural caregivers' burden (CB) in palliative situations, as well as its determinants and consequences, have been numerous during the last 20 years. Yet, studies regarding how terminally ill cancer patients perceive their CB (self-perceived burden, SPB) are less common. This study aims to assess the links between CB and SPB evaluated by means of the very same items. It also aims at identifying the determinants of potential differences between CB and SPB and their consequences on emotional distress among both members of the dyad. Sixty cancer patients from a palliative care unit and their principal natural caregiver completed questionnaires concerning the subjective burden of the caregiver, their own personal emotional distress and that of the other member of the dyad. Globally, patients had a good perception of their CB, although a little overestimated, except for their difficulties in managing their time. Caregivers overestimated patients' distress. The minimisation by patients of CB was a source of emotional distress for the latter, and the perception of being a burden to others was a source of depression for patients. These results did not depend on the nature of the relationship between patients and their caregivers. This data confirmed the need to study the experiences of the patient-caregiver dyad as well as their communication of their respective experiences, with a prospect to offer clinical interventions to optimise the quality of life and health of patients and their close relatives.Copyright © 2015 John Wiley & Sons, Ltd.Lire moins >
Lire la suite >Studies regarding natural caregivers' burden (CB) in palliative situations, as well as its determinants and consequences, have been numerous during the last 20 years. Yet, studies regarding how terminally ill cancer patients perceive their CB (self-perceived burden, SPB) are less common. This study aims to assess the links between CB and SPB evaluated by means of the very same items. It also aims at identifying the determinants of potential differences between CB and SPB and their consequences on emotional distress among both members of the dyad. Sixty cancer patients from a palliative care unit and their principal natural caregiver completed questionnaires concerning the subjective burden of the caregiver, their own personal emotional distress and that of the other member of the dyad. Globally, patients had a good perception of their CB, although a little overestimated, except for their difficulties in managing their time. Caregivers overestimated patients' distress. The minimisation by patients of CB was a source of emotional distress for the latter, and the perception of being a burden to others was a source of depression for patients. These results did not depend on the nature of the relationship between patients and their caregivers. This data confirmed the need to study the experiences of the patient-caregiver dyad as well as their communication of their respective experiences, with a prospect to offer clinical interventions to optimise the quality of life and health of patients and their close relatives.Copyright © 2015 John Wiley & Sons, Ltd.Lire moins >
Langue :
Anglais
Audience :
Internationale
Vulgarisation :
Non
Établissement(s) :
CHU Lille
CNRS
Université de Lille
CNRS
Université de Lille
Collections :
Date de dépôt :
2019-12-09T16:53:12Z
2019-12-17T15:56:14Z
2023-06-05T12:17:37Z
2019-12-17T15:56:14Z
2023-06-05T12:17:37Z