Qualité de vie de la fratrie d’enfants atteints de mucoviscidose : le point de vue des parents et des enfants

Abstract

Objectives. – The impact of the presence of a child with cystic fibrosis in the family on the siblings is rarely studied. Moreover, the available empirical data are not clear. This study aims at evaluating the siblings’ quality of life according to the assessments performed by, on the one hand, the parents and, on the other hand, the brothers and/or the sisters of the sick child.