Title :

Do spouse caregivers of young and older persons with dementia have different needs? A comparative study

Author(s) :

Wawrziczny, Emilie [Auteur]
Laboratoire Sciences Cognitives et Sciences Affectives - UMR 9193 [SCALab]
Pasquier, Florence [Auteur]
Troubles cognitifs dégénératifs et vasculaires - U1171
Ducharme, Francine [Auteur]
Centre de recherche de l'Institut universitaire de gériatrie de Montreal [CRIUGM]
Kergoat, Marie-Jeanne [Auteur]
Centre de recherche de l'Institut universitaire de gériatrie de Montreal [CRIUGM]
Antoine, Pascal [Auteur]
Laboratoire Sciences Cognitives et Sciences Affectives - UMR 9193 [SCALab]

Journal title :

Psychogeriatrics

Abbreviated title :

Psychogeriatrics

Volume number :

17

Pages :

282-281

Publisher :

Wiley Online Library

Publication date :

2017-09

ISSN :

1479-8301

HAL domain(s) :

Sciences cognitives

English abstract : [en]

AIM: The aim of this study was to explore the needs of spouse caregivers of persons with dementia (PWD) and then to compare them based on the PWD's age at disease onset. This data could be used to adapt support programmes ...
Show more >AIM: The aim of this study was to explore the needs of spouse caregivers of persons with dementia (PWD) and then to compare them based on the PWD's age at disease onset. This data could be used to adapt support programmes to address differences between the two groups. METHOD: Thirty-eight spouse caregivers of persons with late-onset dementia and 40 spouse caregivers of persons with early-onset dementia (PEOD) agreed to participate in the study. The mean ± SD age of the PEOD was 57.6 ± 4.0 years, whereas it was 80.9 ± 5.3 years for the persons with late-onset dementia. Interviews were conducted in the spouse caregivers' homes with only the spouse caregiver. The semi-structured interviews were based on the French version of the Carers Outcome Agreement Tool. The interviews were analyzed in two steps. The first step was qualitative to identify needs. The data were thematically analyzed using QSR NVivo 10. The second step was quantitative to compare the needs depending on the PWD's age at onset. The comparison between the two groups was performed using the χ(2) test. RESULTS: The results demonstrated that the majority of needs are the same for the two groups of spouse caregivers. All caregivers need to unwind, to stimulate and pay attention to the PWD, to break the isolation, and to be more prepared and confident. However, some differences emerge, with the spouse caregivers of PEOD expressing a greater number of needs. The caregivers of PEOD seem to have a greater need to interact and maintain contacts with other people (P = 0.001), have more general care-related needs (P = 0.005), require more appropriate care structures (P = 0.037), and need greater assistance with administrative procedures (P = 0.004). CONCLUSION: To improve spouse caregivers' well-being and sense of efficiency, it would be interesting to develop a support programme with a common framework and specific modules depending on the PWD's age at disease onset.Show less >

Language :

Anglais

Audience :

Internationale

Popular science :

Non

ANR Project :

/

Other project(s) or funding source(s) :

Fonds de Recherche du Québec-Santé (Montreal, Quebec, Canada)
the Canadian Institutes of Health Research (Ottawa, Ontario, Canada)
the Laboratoire d’Excellence (investment programme for the future)
DISTALZ (Development of Innovative Strategies for a Transdisciplinary Approach to Alzheimer’s Disease)
Maison Européenne des Sciences de l’Homme et de la Société (Lille, France)

Administrative institution(s) :

Université de Lille
CNRS
CHU Lille

Collections :

• Lille Neurosciences & Cognition (LilNCog) - U 1172
• Sciences Cognitives et Sciences Affectives (SCALab) - UMR 9193

Research team(s) :

Équipe Dynamique Émotionnelle et Pathologies (DEEP)

Submission date :

2019-02-13T14:17:43Z
2020-01-21T11:55:11Z
2021-06-18T11:15:30Z
2023-08-22T08:10:24Z
2023-08-22T12:52:01Z
2023-12-31T17:42:55Z
2024-01-16T12:26:15Z
2024-03-06T09:16:16Z
2024-03-10T16:48:04Z
2024-03-10T16:53:36Z
2024-03-20T07:33:13Z