Title :

Antiphospholipid syndrome: state of the art on clinical practice guidelines.

Author(s) :

Limper, Marteen [Auteur]
Scire Carlo, Alberto [Auteur]
Talarico, Rosaria [Auteur]
Amoura, Zahir [Auteur]
Avcin, Tadej [Auteur]
Basile, Martina [Auteur]
Burmester, Gerd [Auteur]
Carli, Linda [Auteur]
Cervera, Ricard [Auteur]
Costedoat-Chalumeau, Nathalie [Auteur]
Doria, Andrea [Auteur]
Dorner, Thomas [Auteur]
Fonseca Joao, Eurico [Auteur]
Galetti, Ilaria [Auteur]
Hachulla, Eric [Auteur]
Lille Inflammation Research International Center - U 995 [LIRIC]
Launay, David [Auteur]
Lille Inflammation Research International Center - U 995 [LIRIC]
Lourenco, Filipa [Auteur]
Macieira, Carla [Auteur]
Meroni, Pierluigi [Auteur]
Montecucco Carlo, Maurizio [Auteur]
Moraes-Fontes Maria, Francisca [Auteur]
Mouthon, Luc [Auteur]
Nalli, Cecilia [Auteur]
Ramoni, Veronique [Auteur]
Tektonidou, Maria [Auteur]
Van Laar Jacob, M [Auteur]
Bombardieri, Stefano [Auteur]
Schneider, Matthias [Auteur]
Smith, Vanessa [Auteur]
Vieira, Ana [Auteur]
Cutolo, Maurizio [Auteur]
Mosca, Marta [Auteur]
Tincani, Angela [Auteur]

Journal title :

RMD open

Abbreviated title :

RMD Open

Volume number :

4

Pages :

e000785

Publication date :

2018-01-01

ISSN :

2056-5933
2056-5933

HAL domain(s) :

Sciences du Vivant [q-bio]

English abstract : [en]

Antiphospholipid syndrome (APS) is a rare disease characterised by venous and/or arterial thrombosis, pregnancy complications and the presence of specific autoantibodies called antiphospholipid antibodies. This review ...
Show more >Antiphospholipid syndrome (APS) is a rare disease characterised by venous and/or arterial thrombosis, pregnancy complications and the presence of specific autoantibodies called antiphospholipid antibodies. This review aims to identify existing clinical practice guidelines (CPG) as part of the ERN ReCONNET project, aimed at evaluating existing CPGs or recommendations in rare and complex diseases. Seventeen papers providing important data were identified; however, the literature search highlighted the scarceness of reliable clinical data to develop CPGs. With no formal clinical guidelines in place, diagnosis and treatment of APS is largely based on consensus and expert opinion. Patients' unmet need refers to the understanding of the disease and its clinical picture and implications, the need of education for patients, family members and healthcare providers, as well as to the development of monitoring pathways involving multiple healthcare providers.Show less >

Language :

Anglais

Audience :

Internationale

Popular science :

Non

Administrative institution(s) :

Inserm
Université de Lille
CHU Lille

Collections :

• Institut de Recherche Translationnelle sur l'Inflammation (INFINITE) - U1286

Research team(s) :

Immunity, inflammation and fibrsis in auto and allo-reactivity

Submission date :

2019-03-01T14:07:51Z