Good practices for clinical data warehouse implementation: A case study in France.

Doutreligne, Matthieu; Degremont, Adeline; Jachiet, Pierre-Alain; Lamer, Antoine; Tannier, Xavier

Document type :

Article dans une revue scientifique: Article de synthèse/Review paper

DOI :

10.1371/journal.pdig.0000298

PMID :

37410797

Permalink :

http://hdl.handle.net/20.500.12210/89754

Title :

Good practices for clinical data warehouse implementation: A case study in France.

Author(s) :

Doutreligne, Matthieu [Auteur]
Haute Autorité de Santé [Saint-Denis La Plaine] [HAS]
Degremont, Adeline [Auteur]
Haute Autorité de Santé [Saint-Denis La Plaine] [HAS]
Jachiet, Pierre-Alain [Auteur]
Haute Autorité de Santé [Saint-Denis La Plaine] [HAS]
Lamer, Antoine [Auteur]

METRICS : Evaluation des technologies de santé et des pratiques médicales - ULR 2694
Tannier, Xavier [Auteur]
Laboratoire d'Informatique Médicale et Ingénierie des Connaissances en e-Santé [LIMICS]

Journal title :

PLOS Digital Health

Abbreviated title :

PLOS Digit Health

Volume number :

Pages :

e0000298

Publication date :

2023-07-15

ISSN :

2767-3170

HAL domain(s) :

Sciences du Vivant [q-bio]

English abstract : [en]

Real-world data (RWD) bears great promises to improve the quality of care. However, specific infrastructures and methodologies are required to derive robust knowledge and brings innovations to the patient. Drawing upon the ...
Show more >Real-world data (RWD) bears great promises to improve the quality of care. However, specific infrastructures and methodologies are required to derive robust knowledge and brings innovations to the patient. Drawing upon the national case study of the 32 French regional and university hospitals governance, we highlight key aspects of modern clinical data warehouses (CDWs): governance, transparency, types of data, data reuse, technical tools, documentation, and data quality control processes. Semi-structured interviews as well as a review of reported studies on French CDWs were conducted in a semi-structured manner from March to November 2022. Out of 32 regional and university hospitals in France, 14 have a CDW in production, 5 are experimenting, 5 have a prospective CDW project, 8 did not have any CDW project at the time of writing. The implementation of CDW in France dates from 2011 and accelerated in the late 2020. From this case study, we draw some general guidelines for CDWs. The actual orientation of CDWs towards research requires efforts in governance stabilization, standardization of data schema, and development in data quality and data documentation. Particular attention must be paid to the sustainability of the warehouse teams and to the multilevel governance. The transparency of the studies and the tools of transformation of the data must improve to allow successful multicentric data reuses as well as innovations in routine care.Show less >

Language :

Anglais

Audience :

Internationale

Popular science :

Non

Administrative institution(s) :

Université de Lille
CHU Lille

Collections :

METRICS : Evaluation des technologies de santé et des pratiques médicales - ULR 2694

Submission date :

2023-11-15T01:43:37Z
2024-03-28T12:34:32Z

Version	Link	Modification date
2	20.500.12210/89754*	2024-03-28T12:22:32Z
1	20.500.12210/89754.1	2023-11-15T01:43:37Z

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Good practices for clinical data warehouse ...

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