Title :

Dealing with the diagnosis of Parkinson's disease and its implications for couple functioning in the early stage: An interpretative phenomenological analysis

Author(s) :

Wawrziczny, Emilie [Auteur]
Laboratoire Sciences Cognitives et Sciences Affectives - UMR 9193 [SCALab]
Flinois, Bérengère [Auteur]
Constant, Emilie [Auteur]
Laboratoire Sciences Cognitives et Sciences Affectives - UMR 9193 [SCALab]
Brugallé, Elodie [Auteur]
Sokolowski, Céline [Auteur]
Manceau, Charlotte [Auteur]
415060|||Laboratoire Sciences Cognitives et Sciences Affectives - UMR 9193 [SCALab] (VALID)
Baille, Guillaume [Auteur]
Troubles cognitifs dégénératifs et vasculaires - U 1171 - EA 1046 [TCDV]
Defebvre, Luc [Auteur]
Dujardin, Kathy [Auteur]
Antoine, Pascal [Auteur]
Laboratoire Sciences Cognitives et Sciences Affectives - UMR 9193 [SCALab]

Journal title :

PLoS ONE

Volume number :

19

Pages :

e0294240

Publication date :

2024-02-21

Article status :

À paraître

HAL domain(s) :

Sciences cognitives

English abstract : [en]

For couples facing Parkinson’s disease, marital relationships are significantly impacted, even at the early stages of the disease. However, very few studies have explicitly explored the functioning of the couple and how ...
Show more >For couples facing Parkinson’s disease, marital relationships are significantly impacted, even at the early stages of the disease. However, very few studies have explicitly explored the functioning of the couple and how both partners deal with Parkinson’s disease. The aim of this study was to explore the experiences and strategies of couples facing Parkinson’s disease in the early stage using dyadic interpretative phenomenological analysis. Methods Fifteen couples agreed to participate in the study. Semistructured interviews were conducted with each partner separately regarding his or her individual experience with Parkinson’s disease, the couple’s history, the impact of the diagnosis on the functioning of the couple, and his or her projections for the future. Results Three higher-order themes emerged from the analyses. The first theme, "Being tested by the diagnosis", highlights 4 dyadic configurations according to the individual’s and the couple’s capacity for adjustment following the diagnosis: "noncongruent", "collapsed", "relieved" and "avoidant". The second theme, "Talking about everything except the disease", underlines that communication about the disease is often avoided both within the couple and with relatives to protect the persons with Parkinson’s disease or respect their wishes. The third theme, "Supporting each other", describes the different levels of harmony between the two partners in the management of daily life and symptoms and their relational impacts. Conclusion These results allow us to better understand the experiences of both partners and to highlight the importance of promoting better acceptance of the diagnosis by persons with Parkinson’s disease to allow better communication between partners and with relatives. Such support prevents disease-specific distress and facilitates better adjustment in the later stages of the disease.Show less >

Language :

Anglais

Audience :

Internationale

Popular science :

Non

Administrative institution(s) :

Université de Lille
CNRS
CHU Lille

Collections :

• Lille Neurosciences & Cognition (LilNCog) - U 1172
• Sciences Cognitives et Sciences Affectives (SCALab) - UMR 9193

Research team(s) :

Équipe Dynamique Émotionnelle et Pathologies (DEEP)

Submission date :

2023-12-14T18:22:36Z
2023-12-20T15:05:24Z
2024-02-29T15:44:20Z
2024-02-29T15:52:55Z
2024-08-22T07:41:44Z