Participation des patients à la recherche ...
Type de document :
Compte-rendu et recension critique d'ouvrage
DOI :
Titre :
Participation des patients à la recherche en santé : une classification des schémes de coopération
Auteur(s) :
Las Vergnas, Olivier [Auteur]
Centre Interuniversitaire de Recherche en Education de Lille - ULR 4354 [CIREL]
CREF: Équipe Apprenance et Formation des Adultes
Centre Interuniversitaire de Recherche en Education de Lille - ULR 4354 [CIREL]
CREF: Équipe Apprenance et Formation des Adultes
Titre de la revue :
Journal of Participatory Medicine
Pagination :
e16
Éditeur :
JMIR Publications
Date de publication :
2017
ISSN :
2152-7202
Mot(s)-clé(s) en anglais :
typology
patient engagement
bibliometrics
popular epidemiology
patient organization
patient engagement
bibliometrics
popular epidemiology
patient organization
Discipline(s) HAL :
Sciences de l'Homme et Société/Education
Sciences de l'Homme et Société/Méthodes et statistiques
Sciences du Vivant [q-bio]/Santé publique et épidémiologie
Sciences de l'Homme et Société/Méthodes et statistiques
Sciences du Vivant [q-bio]/Santé publique et épidémiologie
Résumé en anglais : [en]
Background: The number of academic papers referring to patient engagement or to related terms has been rising sharply for at least 20 years; several review articles have recently been published enumerating a wide variety ...
Lire la suite >Background: The number of academic papers referring to patient engagement or to related terms has been rising sharply for at least 20 years; several review articles have recently been published enumerating a wide variety of situations of patient involvement in research and partnership with health professionals.Objective: As no standardized keywords and no shared classifications exist to facilitate comparative studies of situations where patients and their organizations are recognized as coresearchers, this paper purports to create a typology to analyze those situations.Methods: Based on 8 already existing meta-reviews or related studies, this work is achieved using a template based on Claude Bernard’s conceptualization about experimental medicine.Results: This typology allows differentiating between modes of involvement and levels of patients reflexivity mobilized in evidence-based medicine (EBM) trials. Screening through a first set of various meta-reviews using this typology shows that a high level of reflexivity is seldom observed and seen only when a patient organization (PO) is involved in the process. This suggests that such an organization can play several roles essential to high reflexivity trials; the PO is capable not only of grouping singular approaches but also of synchronizing and correlating them. However, as nowadays health researchers and POs give more attention to syndromes or troubles for which EBM clinical trials are not relevant due to lack of biomedical indicators (eg, fibromyalgia, chronic fatigue syndrome, or psychiatric disorders), a supplementary mediation category is added to take into account action-research, community-based participatory research, and grounded theories.Conclusions: With this new category, this typology should be able to classify most of the cooperation schemes and thus be a useful tool for the next systematic reviews.Lire moins >
Lire la suite >Background: The number of academic papers referring to patient engagement or to related terms has been rising sharply for at least 20 years; several review articles have recently been published enumerating a wide variety of situations of patient involvement in research and partnership with health professionals.Objective: As no standardized keywords and no shared classifications exist to facilitate comparative studies of situations where patients and their organizations are recognized as coresearchers, this paper purports to create a typology to analyze those situations.Methods: Based on 8 already existing meta-reviews or related studies, this work is achieved using a template based on Claude Bernard’s conceptualization about experimental medicine.Results: This typology allows differentiating between modes of involvement and levels of patients reflexivity mobilized in evidence-based medicine (EBM) trials. Screening through a first set of various meta-reviews using this typology shows that a high level of reflexivity is seldom observed and seen only when a patient organization (PO) is involved in the process. This suggests that such an organization can play several roles essential to high reflexivity trials; the PO is capable not only of grouping singular approaches but also of synchronizing and correlating them. However, as nowadays health researchers and POs give more attention to syndromes or troubles for which EBM clinical trials are not relevant due to lack of biomedical indicators (eg, fibromyalgia, chronic fatigue syndrome, or psychiatric disorders), a supplementary mediation category is added to take into account action-research, community-based participatory research, and grounded theories.Conclusions: With this new category, this typology should be able to classify most of the cooperation schemes and thus be a useful tool for the next systematic reviews.Lire moins >
Langue :
Anglais
Vulgarisation :
Non
Source :
Fichiers
- https://hal.archives-ouvertes.fr/hal-01625719/document
- Accès libre
- Accéder au document
- https://doi.org/10.2196/jopm.8933
- Accès libre
- Accéder au document
- https://hal.archives-ouvertes.fr/hal-01625719/document
- Accès libre
- Accéder au document
- document
- Accès libre
- Accéder au document
- fc-xsltGalley-8933-150022-29-PB.pdf
- Accès libre
- Accéder au document
- jopm.8933
- Accès libre
- Accéder au document