ERN ReCONNET points to consider for treating ...
Type de document :
Article dans une revue scientifique: Article original
URL permanente :
Titre :
ERN ReCONNET points to consider for treating patients living with autoimmune rheumatic diseases with antiviral therapies and anti-SARS-CoV-2 antibody products
Auteur(s) :
Talarico, R. [Auteur]
Azienda Ospedaliero-Universitaria Pisana = Cisanello University Hospital [Pisa]
Ramirez, G. A. [Auteur]
IRCCS Ospedale San Raffaele [Milan, Italy]
Barreira, S. C. [Auteur]
Universidade de Lisboa
Cardamone, C. [Auteur]
Università degli Studi di Salerno = University of Salerno [UNISA]
Triggianese, P. [Auteur]
University of Rome Tor Vergata
Aguilera, S. [Auteur]
Andersen, J. [Auteur]
Avcin, T. [Auteur]
University Medical Centre Ljubljana [Ljubljana, Slovenia] [UMCL]
Benistan, K. [Auteur]
Hôpital Raymond Poincaré (Garches) [GHU AP-HP Université Paris-Saclay]
Bertsias, G. [Auteur]
University of Crete [Heraklion] [UOC]
Bortoluzzi, A. [Auteur]
Università degli Studi di Ferrara = University of Ferrara [UniFE]
Bouillot, C. [Auteur]
Bulina, I. [Auteur]
Riga Stradins University [RSU]
Burmester, G. R. [Auteur]
Humboldt-Universität zu Berlin = Humboldt University of Berlin = Université Humboldt de Berlin [HU Berlin]
Callens, S. [Auteur]
Ghent University Hospital
Carreira, P. E. [Auteur]
Hospital Universitario 12 de Octubre [Madrid]
Cervera, R. [Auteur]
Institut d'Investigacions Biomèdiques August Pi i Sunyer [IDIBAPS]
Cutolo, M. [Auteur]
Istituto di ricovero e cura a carattere scientifico Azienda Ospedaliera Universitaria "San Martino" [IRCCS AOU San Martino]
Damian, L. [Auteur]
Technical University of Cluj-Napoca
Della Torre, E. [Auteur]
Ospedale San Raffaele
Faria, R. [Auteur]
Universidade do Porto = University of Porto
Fonseca, J. E. [Auteur]
Universidade de Lisboa
Galetti, I. [Auteur]
Hachulla, Eric [Auteur]
Institut de Recherche Translationnelle sur l'Inflammation (INFINITE) - U1286
Iaccarino, L. [Auteur]
Azienda Ospedale Università di Padova = Hospital-University of Padua [AOUP]
Jacobsen, S. [Auteur]
Rigshospitalet [Copenhagen]
Khmelinskii, N. [Auteur]
Universidade de Lisboa
Limper, M. [Auteur]
Universiteit Utrecht / Utrecht University [Utrecht]
Marinello, D. [Auteur]
Azienda Ospedaliero-Universitaria Pisana = Cisanello University Hospital [Pisa]
Meyer, A. [Auteur]
Centre Hospitalier Universitaire [Strasbourg] [CHU Strasbourg]
Moroncini, G. [Auteur]
Polytechnic University of Marche [Ancona, Italy] / Università Politecnica delle Marche [Ancona, Italia] [UNIVPM]
Nagy, G. [Auteur]
Semmelweis University of Medicine [Budapest]
Olesinska, M. [Auteur]
Warsaw University of Technology [Warsaw]
Pamfil, C. [Auteur]
Technical University of Cluj-Napoca
Pileckyte, M. [Auteur]
Kaunas University of Technology [KTU]
Pistello, M. [Auteur]
University of Pisa - Università di Pisa
Rednic, S. [Auteur]
Babes-Bolyai University [Cluj-Napoca] [UBB]
Richez, C. [Auteur]
CHU de Bordeaux Pellegrin [Bordeaux]
Romao, V. C. [Auteur]
Universidade de Lisboa
Schneider, M. [Auteur]
University Hospital Düsseldorf
Sciascia, S. [Auteur]
Semmelweis University of Medicine [Budapest]
Scira, C. A. [Auteur]
60273|||Università degli Studi di Milano-Bicocca = University of Milano-Bicocca [UNIMIB] (VALID)
Simonini, G. [Auteur]
Università degli Studi di Firenze = University of Florence = Université de Florence [UniFI]
Smith, V. [Auteur]
Ghent University Hospital
Sulli, A. [Auteur]
Istituto di ricovero e cura a carattere scientifico Azienda Ospedaliera Universitaria "San Martino" [IRCCS AOU San Martino]
Tani, C. [Auteur]
Azienda Ospedaliero-Universitaria Pisana = Cisanello University Hospital [Pisa]
Tas, S. W. [Auteur]
University of Amsterdam [Amsterdam] = Universiteit van Amsterdam [UvA]
Tincani, A. [Auteur]
Università degli Studi di Brescia = University of Brescia [UniBs]
Vonk, M. C. [Auteur]
Radboud University Medical Center [Nijmegen]
Tektonidou, M. [Auteur]
National and Kapodistrian University of Athens [NKUA]
Mosca, M. [Auteur]
Azienda Ospedaliero-Universitaria Pisana = Cisanello University Hospital [Pisa]
Azienda Ospedaliero-Universitaria Pisana = Cisanello University Hospital [Pisa]
Ramirez, G. A. [Auteur]
IRCCS Ospedale San Raffaele [Milan, Italy]
Barreira, S. C. [Auteur]
Universidade de Lisboa
Cardamone, C. [Auteur]
Università degli Studi di Salerno = University of Salerno [UNISA]
Triggianese, P. [Auteur]
University of Rome Tor Vergata
Aguilera, S. [Auteur]
Andersen, J. [Auteur]
Avcin, T. [Auteur]
University Medical Centre Ljubljana [Ljubljana, Slovenia] [UMCL]
Benistan, K. [Auteur]
Hôpital Raymond Poincaré (Garches) [GHU AP-HP Université Paris-Saclay]
Bertsias, G. [Auteur]
University of Crete [Heraklion] [UOC]
Bortoluzzi, A. [Auteur]
Università degli Studi di Ferrara = University of Ferrara [UniFE]
Bouillot, C. [Auteur]
Bulina, I. [Auteur]
Riga Stradins University [RSU]
Burmester, G. R. [Auteur]
Humboldt-Universität zu Berlin = Humboldt University of Berlin = Université Humboldt de Berlin [HU Berlin]
Callens, S. [Auteur]
Ghent University Hospital
Carreira, P. E. [Auteur]
Hospital Universitario 12 de Octubre [Madrid]
Cervera, R. [Auteur]
Institut d'Investigacions Biomèdiques August Pi i Sunyer [IDIBAPS]
Cutolo, M. [Auteur]
Istituto di ricovero e cura a carattere scientifico Azienda Ospedaliera Universitaria "San Martino" [IRCCS AOU San Martino]
Damian, L. [Auteur]
Technical University of Cluj-Napoca
Della Torre, E. [Auteur]
Ospedale San Raffaele
Faria, R. [Auteur]
Universidade do Porto = University of Porto
Fonseca, J. E. [Auteur]
Universidade de Lisboa
Galetti, I. [Auteur]
Hachulla, Eric [Auteur]
Institut de Recherche Translationnelle sur l'Inflammation (INFINITE) - U1286
Iaccarino, L. [Auteur]
Azienda Ospedale Università di Padova = Hospital-University of Padua [AOUP]
Jacobsen, S. [Auteur]
Rigshospitalet [Copenhagen]
Khmelinskii, N. [Auteur]
Universidade de Lisboa
Limper, M. [Auteur]
Universiteit Utrecht / Utrecht University [Utrecht]
Marinello, D. [Auteur]
Azienda Ospedaliero-Universitaria Pisana = Cisanello University Hospital [Pisa]
Meyer, A. [Auteur]
Centre Hospitalier Universitaire [Strasbourg] [CHU Strasbourg]
Moroncini, G. [Auteur]
Polytechnic University of Marche [Ancona, Italy] / Università Politecnica delle Marche [Ancona, Italia] [UNIVPM]
Nagy, G. [Auteur]
Semmelweis University of Medicine [Budapest]
Olesinska, M. [Auteur]
Warsaw University of Technology [Warsaw]
Pamfil, C. [Auteur]
Technical University of Cluj-Napoca
Pileckyte, M. [Auteur]
Kaunas University of Technology [KTU]
Pistello, M. [Auteur]
University of Pisa - Università di Pisa
Rednic, S. [Auteur]
Babes-Bolyai University [Cluj-Napoca] [UBB]
Richez, C. [Auteur]
CHU de Bordeaux Pellegrin [Bordeaux]
Romao, V. C. [Auteur]
Universidade de Lisboa
Schneider, M. [Auteur]
University Hospital Düsseldorf
Sciascia, S. [Auteur]
Semmelweis University of Medicine [Budapest]
Scira, C. A. [Auteur]
60273|||Università degli Studi di Milano-Bicocca = University of Milano-Bicocca [UNIMIB] (VALID)
Simonini, G. [Auteur]
Università degli Studi di Firenze = University of Florence = Université de Florence [UniFI]
Smith, V. [Auteur]
Ghent University Hospital
Sulli, A. [Auteur]
Istituto di ricovero e cura a carattere scientifico Azienda Ospedaliera Universitaria "San Martino" [IRCCS AOU San Martino]
Tani, C. [Auteur]
Azienda Ospedaliero-Universitaria Pisana = Cisanello University Hospital [Pisa]
Tas, S. W. [Auteur]
University of Amsterdam [Amsterdam] = Universiteit van Amsterdam [UvA]
Tincani, A. [Auteur]
Università degli Studi di Brescia = University of Brescia [UniBs]
Vonk, M. C. [Auteur]
Radboud University Medical Center [Nijmegen]
Tektonidou, M. [Auteur]
National and Kapodistrian University of Athens [NKUA]
Mosca, M. [Auteur]
Azienda Ospedaliero-Universitaria Pisana = Cisanello University Hospital [Pisa]
Titre de la revue :
Clinical and experimental rheumatology
Nom court de la revue :
Clin. Exp. Rheumatol.
Numéro :
41
Pagination :
-
Date de publication :
2023-12-29
ISSN :
0392-856X
Mot(s)-clé(s) en anglais :
European Reference Networks
COVID-19
antiviral drugs
monoclonal antibodies
rare and complex diseases
rheumatic and musculoskeletal diseases
connective tissue diseases
patient care
European Commission
COVID-19
antiviral drugs
monoclonal antibodies
rare and complex diseases
rheumatic and musculoskeletal diseases
connective tissue diseases
patient care
European Commission
Discipline(s) HAL :
Sciences du Vivant [q-bio]
Résumé en anglais : [en]
Recent studies have shown that people who are immunocompromised may inadvertently play a role in spurring the mutations of the virus that create new variants. This is because some immunocompromised individuals remain at ...
Lire la suite >Recent studies have shown that people who are immunocompromised may inadvertently play a role in spurring the mutations of the virus that create new variants. This is because some immunocompromised individuals remain at risk of getting COVID-19 despite vaccination, experience more severe disease, are susceptible to being chronically infected and remain contagious for longer if they become infected and considering that immunocompromised individuals represent approximately 2% of the overall population, this aspect should be carefully considered. So far, some autoimmune rheumatic disease (ARD) patients with COVID-19 have been treated with antiviral therapies or anti-SARS-CoV-2 antibody products. However, there is no homogeneous approach to these treatment strategies. This issue was addressed within the European Reference Network (ERN) on Rare and Complex Connective Tissue and Musculoskeletal Diseases (ReCONNET) in a discussion among experts and patient’s representatives in the context of the rare and complex connective tissue diseases (rCTDs) covered by the Network. ERN ReCONNET is one of the 24 ERNs launched by the European Commission in 2017 with the aim of tackling low prevalence and rare diseases that require highly specialised treatment and promoting concentration of knowledge and resources through virtual networks involving healthcare providers (HCPs) across the European Union (EU). Considering the urgent need to provide guidance not only to the rCTDs community, but also to the whole ARDs community, a multidisciplinary Task Force, including expert clinicians and European Patient Advocacy Group (ePAG) Advocates, was created in the framework of ERN ReCONNET with the aim of developing overarching principles (OP) and points-to-consider (PtC) on a homogenous approach to treat immunocompromised patients with ARDs (with a particular focus on CTDs) affected by COVID-19 using antiviral therapies and anti-SARS-CoV-2 antibody products. The present work reports the final OP and PtC agreed by the Task Force.Lire moins >
Lire la suite >Recent studies have shown that people who are immunocompromised may inadvertently play a role in spurring the mutations of the virus that create new variants. This is because some immunocompromised individuals remain at risk of getting COVID-19 despite vaccination, experience more severe disease, are susceptible to being chronically infected and remain contagious for longer if they become infected and considering that immunocompromised individuals represent approximately 2% of the overall population, this aspect should be carefully considered. So far, some autoimmune rheumatic disease (ARD) patients with COVID-19 have been treated with antiviral therapies or anti-SARS-CoV-2 antibody products. However, there is no homogeneous approach to these treatment strategies. This issue was addressed within the European Reference Network (ERN) on Rare and Complex Connective Tissue and Musculoskeletal Diseases (ReCONNET) in a discussion among experts and patient’s representatives in the context of the rare and complex connective tissue diseases (rCTDs) covered by the Network. ERN ReCONNET is one of the 24 ERNs launched by the European Commission in 2017 with the aim of tackling low prevalence and rare diseases that require highly specialised treatment and promoting concentration of knowledge and resources through virtual networks involving healthcare providers (HCPs) across the European Union (EU). Considering the urgent need to provide guidance not only to the rCTDs community, but also to the whole ARDs community, a multidisciplinary Task Force, including expert clinicians and European Patient Advocacy Group (ePAG) Advocates, was created in the framework of ERN ReCONNET with the aim of developing overarching principles (OP) and points-to-consider (PtC) on a homogenous approach to treat immunocompromised patients with ARDs (with a particular focus on CTDs) affected by COVID-19 using antiviral therapies and anti-SARS-CoV-2 antibody products. The present work reports the final OP and PtC agreed by the Task Force.Lire moins >
Langue :
Anglais
Audience :
Internationale
Vulgarisation :
Non
Établissement(s) :
Université de Lille
Inserm
CHU Lille
Inserm
CHU Lille
Date de dépôt :
2024-02-06T22:48:39Z
2024-03-20T08:56:53Z
2024-04-16T06:50:28Z
2024-04-16T06:53:20Z
2024-03-20T08:56:53Z
2024-04-16T06:50:28Z
2024-04-16T06:53:20Z