Titre :

Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English-speaking regions: Before and during the COVID-19 pandemic

Auteur(s) :

Grycuk, E. [Auteur]
Chen, Yaohua [Auteur]
Lille Neurosciences & Cognition - U 1172 [LilNCog]
Almirall-Sanchez, A. [Auteur]
Higgins, D. [Auteur]
Galvin, M. [Auteur]
Kane, J. [Auteur]
Kinchin, I. [Auteur]
Lawlor, B. [Auteur]
Rogan, C. [Auteur]
Russell, G. [Auteur]
O'sullivan, R. [Auteur]
Leroi, Iracema [Auteur]
Trinity College Dublin

Titre de la revue :

Int. J. Geriatr. Psychiatr.

Nom court de la revue :

Int. J. Geriatr. Psychiatr.

Numéro :

37

Éditeur :

Wiley

Date de publication :

2024-03-27

ISSN :

0885-6230

Mot(s)-clé(s) en anglais :

brain health
brain health conditions
Caregiver burden
caregivers
COVID-19
dementia
loneliness
mental health
mental illness
social isolation

Discipline(s) HAL :

Sciences du Vivant [q-bio]

Résumé en anglais : [en]

Background Public health restrictions due to the COVID-19 (SARS CoV-2) pandemic have disproportionately affected informal caregivers of people living with long term health conditions. We aimed to explore levels of care ...
Lire la suite >Background Public health restrictions due to the COVID-19 (SARS CoV-2) pandemic have disproportionately affected informal caregivers of people living with long term health conditions. We aimed to explore levels of care burden, loneliness, and social isolation among caregivers of people with enduring physical and brain health conditions in English-speaking regions worldwide, by investigating outcomes before and during the COVID-19 pandemic. Methods A cross-sectional anonymous online survey data from 2287 English-speaking caregivers of people with long term health conditions from four English-speaking regions (UK, Ireland, USA, New Zealand) included measures of care burden, loneliness, and social isolation, reported before and during the COVID-19 pandemic. Analyses were descriptive, followed by an ordinal regression model for predictors of burden. Results Compared to pre-pandemic levels, all caregivers experienced a significant increase in burden, loneliness, and isolation. Caregivers of people with both brain health and physical conditions were the most burdened and had the highest levels of loneliness and isolation compared to caregivers of people with either a brain health or physical condition only. The increase in care burden among caregivers of people with brain health challenges was associated with caregiver's gender, moderate and severe emotional loneliness, magnitude and frequency of isolation during the pandemic, and care circumstances (cohabitation with the care recipient, restrictions on the ability to provide care). Conclusions Health and social care interventions should target caregivers' care circumstances and psychological outcomes, particularly in women, accounting for the significant additional burden of care, loneliness, and isolation resulting from pandemic-related restrictions.Lire moins >

Langue :

Anglais

Audience :

Internationale

Vulgarisation :

Non

Établissement(s) :

Université de Lille
Inserm
CHU Lille

Collections :

• Lille Neurosciences & Cognition (LilNCog) - U 1172

Date de dépôt :

2024-05-06T22:57:31Z
2024-10-23T07:41:08Z