Title :

Patients' real-world experience with inflammatory bowel disease: a cross-sectional survey in tertiary care centres from the getaid group

Author(s) :

Nachury, Maria [Auteur]
Institut de Recherche Translationnelle sur l'Inflammation (INFINITE) - U1286
Bouhnik, Yoram [Auteur]
Université Paris Diderot - Paris 7 [UPD7]
Serrero, Melanie [Auteur]
Université de la Méditerranée - Aix-Marseille 2
Filippi, Jerome [Auteur]
Roblin, Xavier [Auteur]
Kirchgesner, Julien [Auteur]
Laboratoire des biomolécules [LBM UMR 7203]
Bouguen, Guillaume [Auteur]
Nutrition, Métabolismes et Cancer [NuMeCan]
Franchimont, Denis [Auteur]
Savoye, Guillaume [Auteur]
Buisson, Anthony [Auteur]
Université d'Auvergne - Clermont-Ferrand I [UdA]
Louis, Edouard [Auteur]
Nancey, Stéphane [Auteur]
Université Claude Bernard Lyon 1 [UCBL]
Abitbol, Vered [Auteur]
Reimund, Jean-Marie [Auteur]
Interface de Recherche Fondamentale et Appliquée en Cancérologie [IRFAC - Inserm U1113]
Dewit, Olivier [Auteur]
Vuitton, Lucine [Auteur]
Matthieu, Nicolas [Auteur]
Peyrin-Biroulet, Laurent [Auteur]
Université de Lorraine [UL]
Gilletta, Cyrielle [Auteur]
Tadbiri, Sara [Auteur]
Early detection of Colon Cancer using Molecular Markers and Microbiota (EA 7375) [EC2M3]
Allez, Matthieu [Auteur]
Viennot, Stéphanie [Auteur]
Bourreille, Arnaud [Auteur]
Laharie, David [Auteur]
Université de Bordeaux [UB]
Amiot, Aurelien [Auteur]
Early detection of Colon Cancer using Molecular Markers and Microbiota (EA 7375) [EC2M3]

Journal title :

Digestive and Liver Disease

Abbreviated title :

Dig Liver Dis

Volume number :

53

Pages :

434-441

Publication date :

2021-04

ISSN :

1878-3562

Keyword(s) :

Crohn?s disease
Inflammatory bowel disease
Patients experience
Ulcerative colitis

HAL domain(s) :

Sciences du Vivant [q-bio]

English abstract : [en]

BACKGROUND: Patients' experience with healthcare professionals could influence their clinical outcomes. OBJECTIVE: To assess inflammatory bowel disease (IBD) patients' experience with their disease, their treatment and ...
Show more >BACKGROUND: Patients' experience with healthcare professionals could influence their clinical outcomes. OBJECTIVE: To assess inflammatory bowel disease (IBD) patients' experience with their disease, their treatment and their relationship with their physician. METHODS: A one-week cross-sectional study was conducted in 42 IBD centres. 2011 consecutive outpatients with IBD completed an anonymous self-report questionnaire assessing their experience with and knowledge of IBD. RESULTS: A quantitative assessment of the doctor-patient relationship revealed that patients' knowledge of IBD and IBD treatment ranged from 7.4 to 8.3 out of 10. In addition to IBD physicians, other sources of information about IBD and current treatment mainly included the internet (80% and 63%, respectively) and general practitioners (61% and 54%). Knowledge about education programmes (28%) was poor, resulting in a lack of willingness to further use these resources (25%). Concerns about IBD treatment were raised in 76% of patients, mostly related to the fear of adverse events (47%) and a lack of efficacy (33%). The need of alternative healthcare professionals was reported by 89% of the sample. CONCLUSIONS: In a large cohort of patients, we highlighted gaps in the management of patients with IBD regarding the need for higher-quality information and the implementation of alternative healthcare professionals.Show less >

Language :

Anglais

Audience :

Internationale

Popular science :

Non

Administrative institution(s) :

CHU Lille
Inserm
Université de Lille

Collections :

• Institut de Recherche Translationnelle sur l'Inflammation (INFINITE) - U1286

Submission date :

2021-07-06T12:50:14Z
2024-01-08T13:43:36Z